There are many different organizations that help people with NF. The Children's Tumor Foundation is a great organization that is researching and fundraising for a cure. The NF community is caring because everyone knows what you are going through. If your kid decides to go to college or trade school, there are many scholarships to help. For example, if your child has a brain or spinal tumor, there are scholarships for that. And they can write their college essay about it.

 Schools can help a lot for children with NF. Teachers can give work before or after a day of doctor's appointment, so they don't have to miss any work. School nurses can give medicine if someone needs medicine at school.